Hereditary Haemorrhagic Telangiectasia

Organisations an addresses

The Netherlands

SWORO

Foundation(Stichting) for Scientific(Wetenschappelijk) Research(Onderzoek) into
Rendu Osler disease (SWORO)

St. Antonius Ziekenhuis

Department of lung diseases
Koekoekslaan 1
3435 CM Nieuwegein
Tel:  088 - 320 15 48              
E-mail: row@antoniusziekenhuis.nl
Bank account : NL09 ABNA 0248 9785 43
SWORO raises funds for research on HHT

Association of vascular patiënts

Hart- & Vaatgroep
Postbus 133
3769 ZJ Soesterberg
T  088 -111 16 00
www.hartenvaatgroep.nl

A brochure about HHT in Dutch and Papiamento is available, as well as information about AVM or aneurysms in the head and about ischemia of the intestines.

St. Antonius Ziekenhuis

Koekoekslaan 1
3435 CM Nieuwegein
Liesbeth Dekter (appointments for screening of new patients)
T  088 - 320 14 25 or 088 - 320 30 00
E  row@antoniusziekenhuis.nl
Outpatient Clinic for Lung Diseases: 088 - 320 14 00
Secretary’s office for lung diseases:  088 - 320 14 84
E  e.blokland@antoniusziekenhuis.nl

Martini Ziekenhuis

Van Swietenlaan 4
9728 NZ Groningen
Outpatient Clinic for Lung Diseases: (050) 524 5930

UMC Utrecht Department of Medical Genetics

Lundlaan 6
3584 EA Utrecht
T 088 - 755 38 00 of 088 - 755 55 55
E genetica@umcutrecht.nl
website: www.umcutrecht.nl/erfelijkheid  (this page can also be viewed in English)

International

International HHT Foundation - CureHHT

P.O. Box 329
Monkton, Maryland 21111 USA
Tel: 410-357-9932
Fax: 410-357-9931
E-mail: hhtinfo@curehht.org
Website: www.curehht.org

Here you will find a list of: