Organisations and addresses
The Netherlands
SWORO
Foundation(Stichting) for Scientific(Wetenschappelijk) Research(Onderzoek) into Rendu Osler disease (SWORO)
St. Antonius Ziekenhuis
Department of lung diseases
Koekoekslaan 1
3435 CM Nieuwegein
Tel: 088 - 320 15 48
E-mail: row@antoniusziekenhuis.nl
Bank account : NL09 ABNA 0248 9785 43
SWORO raises funds for research on HHT
Association of vascular patiënts
Harteraad
Postbus 300
2501 CH Den Haag
T 088 11 11 600
A brochure about HHT in Dutch and Papiamento is available, as well as information about AVM or aneurysms in the head and about ischemia of the intestines.
St. Antonius Ziekenhuis
Koekoekslaan 1
3435 CM Nieuwegein
Liesbeth Dekter (appointments for screening of new patients)
T 088 - 320 14 25 or 088 - 320 30 00
Outpatient Clinic for Lung Diseases: 088 - 320 14 00
Secretary’s office for lung diseases: 088 - 320 14 84
E e.blokland@antoniusziekenhuis.nl
Martini Ziekenhuis
Van Swietenlaan 4
9728 NZ Groningen
Outpatient Clinic for Lung Diseases: (050) 524 5930
UMC Utrecht Department of Medical Genetics
Lundlaan 6
3584 EA Utrecht
T 088 - 755 38 00 of 088 - 755 55 55
website: www.umcutrecht.nl/erfelijkheid(externe link) (this page can also be viewed in English)
International
International HHT Foundation - CureHHT
P.O. Box 329
Monkton, Maryland 21111 USA
Tel: 410-357-9932
Fax: 410-357-9931
E-mail: hhtinfo@curehht.org
Website: www.curehht.org
Here you will find a list of: