Zoekresultaten

Samen met zorgpartijen Fundis, Careyn, Hagro Woerden (huisartsen), RegiozorgNU en Altrecht werkt het St. Antonius Ziekenhuis aan passende zorg in regio Woerden…

ILD Expertisecentrum

Always carry a medical passport or document stating that you have HHT. HHT is a relatively rare disease, which is not easily recognized.

Taking a holiday is rarely a problem for HHT patients, but very dry and hot or very cold climates should be avoided.

Dutch insurance companies have agreed (moratorium) that results of previous DNA tests do not have to be revealed when a patient applies for an insurance.

It is important that women of child-bearing age who may wish to have a baby and who belong to a family with HHT are tested and treated before pregnancy.

It is possible to harvest oöcytes (eggs) from a woman with HHT. These eggs can be fertilised in the laboratory and analysed whether they carry HHT or not.

Patients with HHT can be operated upon as easily as people without HHT, but a few precautions are necessary.

Migraines are common in patients with HHT (23%), but also affect the general population (10%). It concerns particularly migraine with aura (flashes or sounds)…

Drugs that counteract coagulation may sometimes be necessary because of a medical indication like cardiac infarction, thrombosis etc.